Támogatott projektek

Project title Tolerance suits you! Against the exclusion of people living with rare diseases
Project code NCTA-2015-12095-X
Thematic area Action projects
Name of the organization Hungarian Federation of People with Rare and Congenital Diseases (HUFERDIS)
Postal address 1022 Budapest, Pajzs utca 5.
Phone 0617883881; 0613267492
E-mail oriistvan@rirosz.hu
Webpage http://ww.rirosz.hu
Project manager Őri István
Project timeframe December 15th, 2015 - March 15th, 2016
Amount of support 9,988 €

The Hungarian Federation of People with Rare and Congenital Diseases (HUFERDIS) organised a fashion show to raise awareness for rare diseases on 10 March 2016. The slogan of the campaign was „Tolerance suits you well!”. There is not enough medication and treatment for rare disease patients, because of the lack of information and the health care system of Hungary does not support them sufficiently. HUFERDIS’s aim was to communicate that help is available for these people, and wanted to suggest that they should not feel shame because of their diseases. The campaign caused a remarkable media wave. The biggest TV channels of Hungary was present at the fashion show and the campaign itself reached out to more than 250.000 people. Besides the unexpected number of reached people, the traffic of HUFERDIS’ helpline centre increased, compared to the previous period. To learn more about the campaign please check out the video of the fashion show: https://www.youtube.com/watch?v=uxFWUIFXIAY

 

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